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coordinating office:

Professor R-O.Mirimanoff

Professor E.M. Ozsahin

administrator:

Brigitte Pointet

Department of Radiation

Oncology, Centre Hospitalier

Universitaire Vaudois (CHUV)

Rue du Bugnon 46, CH-1011 LAUSANNE, Switzerland 

 

© RCN 2004-2014
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                                                                                                                            rules 

G E N E R A L 

 

Membership of the RCN:
Any clinical investigator may apply for membership of the RCN. He/she must provide a CV and write to the coordinators requesting membership.

   

Any member of the network can decide to study any subject of his/her choice and be principle investigator. 

   

When a member wishes to start a new project, he/she e-mails (or faxes) his/her intent to the RCN coordinators (only one subject at a time), who will give their approval, subject to the number of other new proposals already pending. 

 

As soon as a subject is announced, and known by the other members, no other investigator can choose the same subject and participants give their agreement to collaborate in the study providing they have cases of this disease in their files. (This important rule is stated to prevent conflict situations within the network). 

 

Once the investigator has chosen his/her subject, a letter of motivation and an interest form will be sent (via the coordination office) to members of the network (describing briefly the study goal, study plan and the method chosen and the time period from which patients may be chosen.  

 

Completed Interest Forms will be returned to the investigator and depending on the number of potential patients offered, the decision will be taken whether or not to continue. Case Report Forms will be designed by the investigator and made available to all those who have shown interest in the study. The Coordination Office will make these forms available on the RCN website. Case Report Forms are completed and returned to the investigator who is responsible for further analysis. 

 

Investigators must ensure that data is used only from recognized Network members. Case Report Forms may not be sent to any non-RCN member

 

The analysis is performed by the investigator who keeps all the contributors to his/her study informed of the progress of the study and results of the analysis. 

 

Once the analysis is finished, the investigator sends a draft of the abstract (or, if already made, a draft of a full article) to the main contributors (including all authors) (before submitting it to any meeting or medical journal, etc.) for critical review and comments. 

 

 P U B L I C A T I O N S

 

With regard to authorship, the investigator is the first author (or maximum 2 investigators – a junior and a senior- are the first and the last authors), and the rank of the other authors is given according to the number of patients entered in the study. All members who have sent usable patient data must be co-authors, provided there is unlimited authorship according to the rules of the journal concerned; if not, the authors from the centres with the most patients will be authors while other will be mentioned in an appendix (list of participants).  

 
In the publication the name “Rare Cancer Network” must be mentioned. 
 

Potentially all participants having provided patients are eligible for authorship. Where the authorship is limited (by the journal), the author positions should go to those who have entered the largest % of patients and then in decreasing order of patient accrual. All participants must be mentioned in a footnote. 

 

Where only few authors have contributed patients and where there are possible open slots for further authors, the coordinator of the study may have another author position for a co-worker in his/her institute who has collaborated on the analysis of the data; space permitting, the author with the most patients may have a second author position for a co-worker in his/her institute who has taken part in the gather of patient data in his/her institute, etc. 

 

 

Other features:

 

• Language: English


• Correspondence and communication: preferably by e-mail (fax where this is not possible),

no meetings.


• Characteristics of the network: rapidity of data collection and analysis, informality, low cost


• Spirit: friendly and fruitful cooperation, mutual confidence, trust and loyalty.